Nancy Lane among the dynamic women chosen for the annual women’s roll of honor
Roslyn Heights, NY, March 28, 2018— In celebration of Women’s History Month, the Town of North Hempstead named North Shore Guidance Child & Family Guidance Center’s Board President Nancy Lane to its 25th Annual May W. Newburger Women’s Roll of Honor.
Nancy Lane, President of the Guidance Center’s Board of Directors, in front of the May W. Newburger Honor Roll
“Nancy Lane has been an invaluable asset to North Shore Child & Family Guidance Center for more than 30 years,” says Andrew Malekoff, Executive Director. “She first became involved in one of our parent initiatives in 1985, and was drawn to the Guidance Center’s mission of providing mental health care and substance abuse treatment for all in need in Nassau County, regardless of their ability to pay.In 1986, Nancy joined the Executive Committee of the Board of Directors, and from 1988 through 1992 served as the President of the Board of Directors. Today, she once again is our Board President. Her devotion to our mission and deep knowledge of what we do and of the community we serve make her a dynamic, effective and passionate leader.”
Left to right: Town of North Hempstead Supervisor Judi Bosworth, Guidance Center Board Nancy Lane, Town Clerk Wayne H. Wink Jr. and Town Councilwoman Dina M. De Giorgio
Nancy her husband Dr. Lew Lane have lived in Port Washington, Manhasset and Sands point for 37 years. They have two children: Manhasset residents Alexandra Lane and her husband Randy Cohn, who have a son, Josh; and Drew Lane and his wife Kristen Stokes, who live in Manhattan and have a daughter, Audrey. Nancy volunteered at her children’s school, Buckley Country Day School, for 13 years while her children attended the school. Before becoming a mother, Nancy volunteered at the Port Washington Library. As you can see, Nancy has been a true hero to the town of North Hempstead for nearly four decades.
Guidance Center Board Vice President Jo-Ellen Hazan (left), Board President Nancy Lane (center) and Town of North Hempstead Supervisor Judi Bosworth (right).
Many of the Guidance Center’s previous board and committee members have received this honor over the years, including Susan Isaacs, Lilo Leeds, Joan Saltzman, Amy, Hagedorn, Sondra Pardes, Irene E. Hylton, Jane Schwartz, Heather Schwartz and current board vice president Jo-Ellen Hazan.
About Us:
As the preeminent not-for-profit children’s mental health agency on Long Island, North Shore Child & Family Guidance Center is dedicated to restoring and strengthening the emotional well-being of children (from birth – age 24) and their families. Our highly trained staff of psychiatrists, psychologists, social workers, vocational rehabilitation counselors and other mental health professionals lead the way in diagnosis, treatment, prevention, training, parent education, research and advocacy. The Guidance Center helps children and families address issues such as depression and anxiety; developmental delays; bullying; teen pregnancy; sexual abuse; teen drug and alcohol abuse; and family crises stemming from illness, death, trauma and divorce. For more than 60 years, the Guidance Center has been a place of hope and healing, providing innovative and compassionate treatment to all who enter our doors, regardless of their ability to pay. For more information about the Guidance Center, visit www.northshorechildguidance.org or call (516) 626-1971.
Roslyn Heights, NY, March 27, 2018— Grab your friendsand get ready for a fun afternoon filled with your favorite card (or tile) games, shopping and a fabulous luncheon!
North Shore Child & Family Guidance Center, the preeminent not-for-profit children’s mental health agency on Long Island, is pleased to announce that its Spring Luncheon 2018 will take place on Thursday, April 26, 2018 at Glen Head Country Club from 10 a.m. to 2 p.m. The Clubhouse, which includes a beautiful ballroom, cozy living room area and spacious card room, is the perfect venue for a wonderful afternoon.
The keynote speaker is Victor M. Fornari, MD. Dr. Fornari is Director of the Division of Child & Adolescent Psychiatry at The Zucker Hillside Hospital and Cohen’s Children’s Medical Center and Professor of Psychiatry & Pediatrics at the Donald & Barbara Zucker School of Medicine atHofstra/Northwell. He will be discussing the latest developments in the field of children’s mental health, providing useful information to parents with children of all ages.
The day will open with Mahjong, Canasta and Bridge.Next will be a delicious luncheon buffet and most informative and engaging presentation by Dr. Fornari. Throughout the day, guests will be able to visit unique shopping boutiques from some of Long Island’s trendiest and most charitable small business owners, including Chintz Giraffe,Dale’s Novelty Knits, Dash,Designs That Donate, Meryl Roesch Sunglasses and RFC Fine Jewelry, among others. Items for sale will include apparel, purses, jewelry, accessories and more. There will also be plenty of opportunities to participate in raffles for luxury prizes.
Registration is now open and sponsorships are available by visiting the Guidance Center’s website, www.northshorechildguidance.org or calling 516-626-1971, ext. 309.
About Us:
As the preeminent not-for-profit children’s mental health agency on Long Island, North Shore Child & Family Guidance Center is dedicated to restoring and strengthening the emotional well-being of children (from birth – age 24) and their families. Our highly trained staff of psychiatrists, psychologists, social workers, vocational rehabilitation counselors and other mental health professionals lead the way in diagnosis, treatment, prevention, training, parent education, research and advocacy. The Guidance Center helps children and families address issues such as depression and anxiety; developmental delays; bullying; teen pregnancy; sexual abuse; teen drug and alcohol abuse; and family crises stemming from illness, death, trauma and divorce. For more than 60 years, the Guidance Center has been a place of hope and healing, providing innovative and
compassionate treatment to all who enter our doors, regardless of their ability to pay. For more information about the Guidance Center, visit www.northshorechildguidance.org or call (516) 626-1971.
From Blank Slate Media, March 26, 2018: Students Seeking Sensible Gun Laws Deserve our Support
Activists in Manhattan (Photo provided by Andrew Malekoff)
On March 24 I was proud to stand with the youth leaders of Stoneman Douglas High School and other youth activists across the U.S. As one of them said on a news broadcast, “Every voice matters.”
They demonstrated that by extending their reach to youth survivors beyond Parkland and broadened the frame to include gun violence in all domains.
Think for just a moment about the value-laden authenticity of these social justice youth warriors as compared to what masquerades as leadership in Washington D.C.
Think about Congress’s reliance on the likes of the NRA, Big Pharma and others for campaign financing and, even closer to home, the unending and sordid political corruption trials in municipalities across Long Island.
We have sunk so low in terms of greed, thirst for power and social dysfunction, that it will take our babies to save themselves.
And, some babies they are!
How long before their enemies try to delegitimize their efforts, even beyond characterizing them as inauthentic “crisis actors,” which only serves to reinforce their resolve?
How long before the tabloids attack them and attempt to rip them apart by manufacturing sordid headlines to discredit them?
How long before the NRA public relations corps attempts to marginalize them as ego-tripping puppets of the left and Hollywood elite, rather than the free-thinkers, born of trauma that they are?
How long? Not long. It’s already happening.
Their detractors cannot differentiate between the teens being resourceful in their partnering with adults and being dependent on them.
They don’t need our leadership. They’ve already eclipsed it. But, they will need soldiers of every generation to support them.
And, let us not forget that they have suffered post-traumatic injury and are grieving.
They’ve vowed not to let this go. We cannot lead or co-opt their revolution.
What we can do is follow and support or get out of the way.
Andrew Malekoff
Executive director of the nonprofit children’s mental health agency North Shore Child and Family Guidance Center in Roslyn Heights www.northshorechildguidance.org
It wasn’t necessary for the slaughter of innocents at Sandy Hook to validate that there is evil in the world. But what it did affirm is that if the massacre of six- and seven-year-old children is not off limits, then nothing is.
Now there is Parkland.
In the last 40 years, the United States has mourned scores of mass murders. A number of the locales where these shootings took place were schools – Columbine, Virginia Tech, Sandy Hook, and now Parkland – that have become iconic markers of epidemic violence.
And mass shootings are not only happening in the U.S. In 1996, 16 kindergarten children and their teacher were murdered by a lone gunman in Dunblane, Scotland. Still, those are unusual occurrences in other countries, whereas we have had more than a dozen school shootings since the beginning of this year alone.
After “thoughts and prayers” are paraded around by politicians from all sides, what happens next? Many gun rights advocates, refusing to allow for the fact that our forefathers were talking about the right to bear arms such as muskets and had no conception of guns that could shoot down dozens in an instant, stand in the position that it’s not about guns but rather mental illness.
As the Executive Director of North Shore Child & Family Guidance Center, which serves children and their families facing issues such as depression, anxiety and substance abuse, I have seen the many faces of mental illness and addictions for more than 40 years. It is incredibly rare for those who are labelled as mentally ill to be violent. In fact, they are far more likely to be the victims of violence than the perpetrators.
Nevertheless, we do need to have a discussion about mental illness at times like these. That discussion, however, needs to be about how insurance companies and the elected officials who count on their donations are failing miserably at having adequate numbers of providers on their lists who take insurance. Over and over again, we hear that, before they found North Shore Child & Family Guidance Center, which never turns anyone away for inability to pay, they made numerous calls to the mental health providers on their insurer’s list and found that they no longer take insurance or are booked for months.
We also need to talk about how violence against our youth is rampant, not just in mass shootings. The faces of violence against youths are many and the impact vast. In 2013, a statistical report by the research group Child Trends visualized a hypothetical U.S. high school class of 100 graduates. Among those graduates, it estimated:
71 have experienced physical assault
28 have been victimized sexually (including 10 reporting that they have been the victims of dating violence in the past year and 10 reporting they have been raped)
32 have experienced some form of child maltreatment
27 were in a physical fight
16 carried a weapon in the past year
39 have been bullied, physically or emotionally — 16 in the past year
29 felt “sad and hopeless” continually for at least two weeks during the past year
14 thought seriously about attempting suicide, and
6 made a suicide attempt.
If you read between the lines and the years of mass shootings in America, if only from Columbine to Parkland, there were many more horrific events in between that have all but faded from consciousness. As journalist Gary Smith suggested, “the clock is already ticking in the land of amnesia.”
How long before Parkland, too, is gone?
Malekoff is executive director of the nonprofit children’s mental health agency North Shore Child and Family Guidance Center in Roslyn Heights, NY.
From Anton Media: Andrew Malekoff discusses the Struggle for Access to Mental Health Care
It’s a heartbreaking scenario that is far too common: someone makes the difficult decision to seek out professional help for a mental health or substance abuse problem for themselves or their loved one and is faced with a myriad of roadblocks. They start calling providers on their insurance plan and find that they are not taking new patients, or they no longer accept insurance and only want cash. And the cost of paying out of pocket is too much for many to afford.
Here is the reality: Health insurers are required by law to offer an adequate network of providers for their beneficiaries to choose from, and not just for physical illnesses. This requirement is known in the health insurance industry as network adequacy.
Along with the difficulty of finding a provider who will accept your insurance, the problem is often complicated by a family’s reluctance to seek help for a mental health or drug problem, as opposed to physical illnesses like cancer or diabetes. Despite progress in public education, stigma still looms large.
Once someone takes the leap of faith to ask for help, he or she is too often told, “I’m sorry, I don’t accept your insurance any longer.” When this happens there is a chance they will give up.
It is this reality that spurred North Shore Child & Family Guidance Center to launch a research initiative called Project Access. This entailed creating a survey that was completed by almost 650 people across Long Island. Here is some of what we found:
• Almost 50 percent of the participants said that it was more difficult finding help for mental health or drug problems than finding help for physical illnesses, especially when they were in crisis.
• Nearly 40 percent said that their insurance company did not have an adequate number of providers.
• 66 percent reported that their insurance company was not helpful in finding a suitable provider for themselves or a loved one.
One survey respondent wrote: “A family member within my household required therapy and we had difficulty finding a provider; when we did, scheduling was a nightmare because so many patients were trying to see him. I believe it was because he was one of the few willing to accept multiple insurance policies.” This was a familiar refrain.
Health insurers reimburse mental health and addictions care providers at such low rates that they flee health insurers in droves. This is a civil rights issue and a situation that puts lives at risk.
The NY State agency that Governor Cuomo has charged with monitoring and enforcing network adequacy is the Department of Financial Services. We are using the Project Access data to demand that Governor Cuomo and the Department of Financial Services launch a full scale investigation of access to care in New York State and to hold commercial health insurers’ feet to the fire.
If you agree, print this column, add a note saying “I agree” and include your name and address. You can write to the governor at: The Honorable Andrew M. Cuomo, Governor of New York State, NYS State Capitol Building, Albany, NY 12224; email him at Press.Office@exec.ny.gov; or call him at 518-474-8418.
Andrew Malekoff is the Executive Director of North Shore Child & Family Guidance Center, which provides comprehensive mental health services for children from birth through 24 and their families. To find out more, visit www.northshorechildguidance.org.
Andrew Malekoff featured on Mental Health Now television program, March 6, 2018
See this televised episode of Mental Health Now devoted to the 10th anniversary of the Mental Health Parity and Addiction Equity Act of 2008. With host Matthew Shapiro, NAMI-NYS and guests Tracie Gardner, Legal Action Center and Andrew Malekoff, North Shore Child and Family Guidance Center. Filmed on March 6, 2018 https://vimeo.com/259740918
The 2018 Valentine’s Day massacre at Douglas High School in Parkland, Fla., has elevated beyond cliché status the oft-stated sentiment about a loss of innocence in childhood.
For many, the events of that day evoked painful memories of the 2012 Sandy Hook Elementary School shooting and scores more in recent decades.
Schools, movie theaters, concert venues and more have become American killing fields.
After “thoughts and prayers” are paraded around by politicians from all sides, what happens next?
Many gun rights advocates, refusing to allow for the fact that our forefathers were talking about the right to bear arms such as muskets and had no conception of guns that could shoot down dozens in an instant, stand in the position that it’s not about guns but rather mental illness.
As the executive director of North Shore Child & Family Guidance Center, which serves children and their families facing issues such as depression, anxiety and substance use disorders, I have seen the many faces of mental illness and addictions for more than 40 years.
It is incredibly rare for those who are labeled as mentally ill to be violent. In fact, they are far more likely to be the victims of violence than the perpetrators.
Nevertheless, we do need to have a discussion about mental illness at times like these. That discussion, however, needs to be about how health insurance companies and the elected officials who count on their donations are failing miserably at having adequate numbers of providers on their lists who take insurance.
Over and over again, we hear that, before they found North Shore Child & Family Guidance Center, which never turns anyone away for inability to pay, they made numerous calls to the mental health providers on their insurer’s list and found that they no longer take insurance or are booked for months.
Aside from receiving emotional first-aid, the surviving students from Douglas High are demonstrating that they need to take action; action that represents triumph over the demoralization of helplessness and despair.
Noted trauma expert Bessel van der Kolk said that “talking about the trauma is rarely if ever enough.”
Survivors have a need to create symbols such as memorials or participate in action that “enable them to mourn the dead and establish the historical and cultural meaning of the traumatic events.”
The surviving students from Parkland are turning their heartbreak and rage into activism by demanding a new look into America’s gun laws, as Emily Witt wrote in the New Yorker (Feb. 17).
In her encounters with some of the surviving students she reported that “Their grief was raw, their rage palpable.”
“Emma Gonzalez, a senior at Douglas, had the most searing indictment:
“The people in the government who were voted into power are lying to us. And us kids seem to be the only ones who notice and are prepared to call B.S.
“Companies, trying to make caricatures of the teenagers nowadays, saying that all we are self-involved and trend-obsessed and they hush us into submissions when our message doesn’t reach the ears of the nation, we are prepared to call B.S.
“Politicians who sit in their gilded House and Senate seats funded by the N.R.A., telling us nothing could ever be done to prevent this: we call B.S.
“They say that tougher gun laws do not prevent gun violence: we call B.S.”
From Columbine to Parkland, there have been so many shocking events in between. Too many have faded from consciousness.
As journalist Gary Smith, who wrote about a lesser known 2012 shooting at Chardon High School in Ohio, stated: “The clock is already ticking in the land of amnesia.”
How long before Parkland, too, is gone? If it is up to the young activists in Parkland, never.
Andrew Malekoff
Roslyn Heights
Executive director of North Shore Child & Family Guidance Center, which provides comprehensive mental health services for children from birth through 24 and their families. To find out more, visit www.northshorechildguidance.org.
Remembering without awareness is a phrase I really like. It suggests the retrieval of a memory that escapes conscious awareness.
Recently, I passed the 20-year mark without either parent, and many more years without grandparents. One grandmother, Annie, died before I was born. I was named after her. The other, Jenny, died when I was too young to remember her. My grandfathers, Harry and Joseph, died a few years later, still during my childhood years, but I have memories of both of them.
Each had disabilities and prostheses. Both of Grandpa Harry’s legs were amputated as the result of diabetes. Grandpa Joe lost his eye as the result of a carpentry accident. Their disabilities were never hidden from me. I went with my dad and Grandpa Harry when he had his prosthetic legs fitted. Grandpa Joe regularly took his eye out and showed it to me on request. I used to wonder if I would have artificial parts when I got older.
In my first year of graduate school in 1976, I was assigned to intern in a program called “Aged in Distress.” It was a crisis intervention program for older people. I made home visits to people with physical and mental disabilities, as well as one woman who was bedridden and terminally ill.
Although my primary interest in becoming a social worker was to work with children and teenagers, I was surprised at how much I liked working with older people. I was 25 at the time. Thinking back, it shouldn’t have come as such a surprise to me. Sometime after the internship, I realized that I was remembering without awareness the short time I had with my grandfathers.
Now I know that my early memories and recollections, whether I am consciously aware of them or not, influence how I feel about and relate to others in the present. As a child who experienced my grandfathers’ lives and deaths, I wasn’t conscious of the fact back then that one day I would be dealing with my parents’ aging, illnesses and deaths.
My father had cancer and my mother had heart and kidney problems. I traveled often from my home on Long Island to New Jersey to help care for them, some of that time at the same hospital in Newark where I was born in 1951.
One memorable evening—which also happens to have involved artificial body parts—was the time my mother fell and was taken to the hospital. She called me at 2 a.m. and said, “Andy, will you bring my Polident to the hospital?” Broken arm and bruised face, all she could think about was what she needed to keep her dentures in place so that she would look good.
I took the 90-minute drive from Long Beach to Newark at 2:30 am, retrieved her tooth powder from the medicine cabinet in her home, headed to Beth Israel hospital, spent a few hours with her and drove back to Long Island with enough time to make it to my office for work.
Although the trip was inconvenient, I was aware all along that one good turn deserves another. Both my mother and father took time caring for their parents when they aged while also caring for me and my brother. It is these kinds of life lessons that seep into your unconscious and define the person you become, with many generations to thank.
By Andrew Malekoff, Executive Director of North Shore Child & Family Guidance Center, which provides comprehensive mental health services for children from birth through 24 and their families.
Published in the Anton Media Group papers, Feb. 7, 2018.
By: Adina Genn, Long Island Business News,February 2, 2018
On Long Island, a mother with “Cadillac level” medical benefits struggled to get her child counseling when all of the professionals she called on the North Shore said they don’t take insurance. A father with equally good medical coverage resorted to driving upstate to get his child therapy for the same reason.
These scenarios are not unique, as revealed in a yearlong study produced by North Shore Child Family Guidance Center, a children’s mental health agency headquartered in Roslyn Heights. Through its initiative, “Project Access,” the organization is exploring the challenge of providing timely, affordable mental health treatment and addiction care. It aims to pinpoint obstacles to accessing care and bring about change.
“The landscape for providing community-based mental health and addictions care has changed dramatically during the last decade,” said Andrew Malekoff, executive director of North Shore Child Family Guidance Center. “At the same time that the New York State government has focused most of its attention on Medicaid recipients, middle class families with commercial health insurance have been all but brushed aside.”
Concerns about access to treatment come at a time of a growing need for care. More than 43 million Americans have faced a mental health challenge and more than 20 million grappled with substance abuse, while more than 8 million struggled with both. That’s according to “Pain in the Nation: The Drug, Alcohol and Suicide Epidemics and the Need for a National Resilience Strategy,” a joint study by Trust for America’s Health and Well Being Trust, which looked at figures from 2006 to 2015.
And while federal law established in 2008 requires insurers to provide the same level of mental health and substance abuse services as physical health services, that parity has yet to come to fruition.
Substandard rates of reimbursement
“Fewer and fewer providers accept commercial health insurance,” Malekoff noted. “Why? Because they pay substandard rates of reimbursement, well below the Medicaid rate.”
These findings are similar to those of other experts. According to a 2017 study by Milliman, a consultancy with expertise in the healthcare industry, medical and surgical providers received higher reimbursement rates than behavioral providers for comparable services. Those lower rates for behavioral providers, according to the study, led to “lower network participation by these providers,” making it difficult for people to access treatment, or to seek treatment out of network. In New York, the Milliman study found, patients were 5.8 times more likely to go out of network for care.
Out of 650 Long Islanders surveyed in the Project Access study, nearly 40 percent said their insurance providers did not have an adequate number of providers.
State Senator Elaine Phillips: ‘We need to demand change.’
Photo courtesy of the office of state Sen. Elaine Phillips
Almost half of the survey’s participants said it was more difficult to find help for mental health or substance abuse problems than finding help for physical illnesses, especially once in crisis. Two-thirds said their insurance company was not helpful when it came to finding care for themselves or a family member.
And nearly 40 percent of participants claimed that stigma and affordability were deterrents as they sought care. In addition, 23 percent said they felt that their efforts in trying to access care proved unsuccessful.
“I tried seeking mental health counseling but every time I tried getting help either my insurance wouldn’t be accepted or it was a long waiting time,” a Project Access survey respondent said. This person “was scared at first” but ultimately did get needed care.
“Unfortunately we’ve seen a lot of lack of progress, a lot of noncompliance from the insurers and, in many cases, not enough enforcement by state or federal regulators,” Henry Harbin, an advisor to the Parity Implementation Coalition and former chief executive of Magellan Health Services, told Marketplace, a program produced by American Public Media.
A push for change
Across the nation, leaders are pushing for change. For example, this week, former U.S. Rep. Patrick Kennedy was in Spokane, Washington, supporting mental health parity.
And on Long Island, leaders are asking Gov. Andrew Cuomo to launch a full-scale investigation of “network adequacy,” which requires that health insurers maintain adequate numbers of providers as a condition of their license.
“The Project Access report is a damning indictment of where we are with mental health and addictions care in our state today,” state Sen. Todd Kaminsky, D–Long Beach, said. “We’re not in the 19th or even 20th century. We have to do better.”
“We now have the data when we write to our government and state agencies,” said state Sen. Elaine Phillips, R–Flower Hill. “We need to demand change so people get the support they deserve.”
In January, Kaminsky and Phillips described Project Access’ “startling results” in a joint letter to Maria Vullo, the superintendent of New York State Department of Financial Services.
They said it is “imperative” that the state “conduct(s) a thorough investigation to determine why insurance companies are not being held accountable for network adequacy.” And, they added, “failure to properly treat mental health issues feeds into the opioid epidemic we experience in society today.”
As Malekoff explained in an email to friends and colleagues, the disparity “is a civil rights issue and a matter of life and death.”
Andrew Malekoff, center, along with State Senators Elaine Phillips and Todd Kaminsky
Last week, the Roslyn-based North Shore Child & Family Guidance Center hosted a conference highlighting the difficulties Long Islanders face when seeking help for mental health or chemical dependency issues.
Project Access is a year-long study in which hundreds of Long Islanders were surveyed about their experiences in trying to obtain such medical help. The study was supported by the Long Island Unitarian Universalist Fund of the Long Island Community Foundation.
Of the 650 Long Islanders who took part in the survey, almost half said that it was more difficult finding help for mental health or substance abuse problems than finding help for physical illnesses, nearly 40 percent said that their insurance company did not have an adequate number of providers and two-thirds said that their insurance company was not helpful to them in finding a suitable provider for themselves or a loved one.
Most disturbingly, almost 40 percent reported that stigma and affordability were impediments to seeking care.
“This report verifies what we have long known: Insurance companies and the government are not living up to their responsibility to provide people with quality, affordable and timely mental health and addictions care,” said Andrew Malekoff, executive director of the center. “Even though they are legally bound to have adequate networks of care, they fall far short of that mandate.”
Several speakers shared their stories.
“When my sister’s condition began to worsen, it put our entire family into crisis,” said Kerry Eller. “We knew she needed professional help to get her through this incredibly difficult time. It was extremely challenging to access appropriate treatment for my sister. The insurance company was not helpful with connecting us to in-network providers; they would give us referrals but when we would call, we would often find out that they no longer participated with our plan. It was exhausting and heart breaking to have to endure one failed call after another.”
“At our first visit to the ER, their first question wasn’t ‘How is he doing’ but rather ‘Do you have insurance that covers mental health care?’” added Janet Susin, the president of Queens/Nassau NAMI, on the troubles she faced in getting her son care for schizophrenia. “The reality is that there are not enough psychiatrists, particularly child psychiatrists, and very few are willing to take insurance. We need to do something to rectify that situation.”
Finally, Rebecca Sanin, President/CEO of the Health and Welfare Council of Long Island, spoke of the great disparity in obtaining mental health care as opposed to care for physical illnesses. “Imagine if cancer patients faced delays and inadequate coverage; we would be up in arms as a region,” she said. “Project Access shows that two-thirds of respondents said insurance companies were not helpful and that it required multiple calls and contacts to access care. This is unconscionable. When a person is in crisis, the window to engage in treatment is small, and it may never open again if they are turned away.”
“We are calling on the New York State Department of Financial Services to launch a thorough investigation of this issue,” Malekoff added. “It’s incumbent upon all of us to advocate for change. Access delayed is access denied. People’s lives are at stake.”
Senator Elaine Phillips joined North Shore Child-Family Guidance Center officials at a news conference today to promote the importance of affordable and timely mental health care for all New York residents. . The news conference unveiled results to “Project Access,” a study conducted by the center that explores roadblocks individuals face when trying to obtain mental health and addiction care.
“Timely and affordable mental health and addiction care should be accessible to anyone in need.” Senator Elaine Phillips said. “I applaud the North Shore Child-Family Guidance Center for its unwavering support and dedicated work to raise awareness of a problem that has affected far too many middle and working class families on Long Island. ‘Project Access,’ the Center’s recent study, sheds much needed light on the obstacles individuals face when trying to obtain care for mental health illnesses and substance abuse problems.”
“Project Access” is an initiative to improve access to mental health and addictions care. Nearly 650 Long Islanders responded to the survey, with almost half of the respondents indicating that it was more difficult finding help for mental health or substance abuse problems than finding help for physical illnesses.
The North Shore Child & Family Guidance Center helps children and families address issues such as depression and anxiety, developmental delays, bullying, teen pregnancy, sexual abuse, teen drug and alcohol abuse, and family crises stemming from illness, death, trauma and divorce.
Janet Susin spoke at the press conference about the struggles her son had faced after being diagnosed with schizophrenia. (Photo courtesy of North Shore Child and Family Guidance Center)
Janet Susin said during her family’s first visit to the emergency room after her 16-year-old son was diagnosed with schizophrenia, the hospital staff had only one concern.
“The first question we heard wasn’t, ‘how’s he doing?’ It was, ‘do you have insurance?’” Susin said.
Susin was among a group of concerned relatives, public officials and caregivers at a press conference held Monday by the North Shore Child and Family Guidance Center to discuss the results of a year-long study titled Project Access that examined the ease or difficulty with which patients and their family have accessing mental health and substance abuse care, especially through insurance providers.
North Shore Child Guidance Executive Director Andrew Malekoff said that as part of the study, a 41-question survey was completed by 644 people who answered questions about demographics and experiences as well as an open-ended question for personal stories about the process.
Malekoff said fewer providers accept commercial health insurance plans because their rates of reimbursement are often lower than Medicare rates.
According to Project Access results, almost half the participants said it was more difficult to find help for mental health or substance abuse problems than care for physical ailments, 40 percent said their insurance providers did not have an adequate number of providers, and two-thirds said their insurance company was not helpful in finding a mental health care provider.
State senators Todd Kaminsky (D-Long Beach) and Elaine Phillips (R-Flower Hill) provided a bipartisan front from the state Legislature, both sharing stories of family members who suffered from mental health issues and struggled to receive help.
“The founder of the Nassau-Queens National Alliance on Mental Illness chapter was my cousin Arnold Gould, who passed away last year,” Kaminsky said. “He devoted his life to this issue, and for a long time, Arnold had a son who was the cousin in my family no one talked about or knew existed. We have to turn the page on that. We can do better.”
Kaminsky and Phillips both said they would write letters to Gov. Andrew Cuomo and the state Department of Financial Services with the Project Access data and their concerns about the issue.
“I am extremely proud to be supporting Project Access and to be supporting the mental health industry because it is going to take research like this when we do write the governor and the New York State Department of Financial Services,” Phillips said. “We have data behind it to say this isn’t happening in low socio-economic areas of one part of the state; this is a rampant problem that is happening throughout New York and especially here on Long Island.”
Phillips also said if needed, she would support legislation to make mental health care more accessible and affordable across New York.
North Shore Child and Family Guidance Center partnered with LIU Post for the research, and social work professor Elissa Giffords said the school received approval from their institutional review board before administering the survey to human subjects and placed surveys in waiting rooms and posted flyers with a link to the survey as well.
“People who completed the survey, it’s likely they already accessed care,” Giffords said. “This is quite important, particularly because although they could access treatment, they still reported impediments when seeking this care. This also means there’s a distinct possibility there are many people who gave up seeking care altogether.”
Susin, a past president of the Nassau-Queens chapter of National Alliance on Mental Illness, was a teacher, and her husband was a doctor at North Shore Hospital during that hospital visit 30 years ago, and she quickly learned that while her policy had $1 million worth of mental health coverage, her husband’s only offered $40,000 for the family for life.
Soon after their visit, her son, now 47, was prescribed an anti-psychotic medication and has not been in the hospital since thanks to the care of an excellent psychiatrist — a psychiatrist who charges $250 per visit and does not take insurance, Susin said.
Susin said while their psychiatrist was willing to try working with her insurance company, the agreement ended less than a year later because the psychiatrist believed the rates were too low and receiving payments from the insurers was a hassle.
Susin said she has paid out of pocket ever since.
“We’re lucky we can afford to pay for good care for our son and as a result, he’s remained stable all these years,” she said. “Every person struggling with a psychotic disorder or any mental health condition should have the same opportunity.”
Social worker Kerry Eller also spoke about the struggles of her teenage sister, who has dealt with mental health and substance abuse issues since she was 11.
Her mother was a single parent, trying to manage two younger boys while fighting to get her daughter the care she needed. Eller said her mother often blamed herself, asking if she caused these problems for her daughter and whether she was enough of a mother to care for her children.
“When anyone in my family had some kind of physical ailment, there were no issues getting care,” Eller said. “When I needed my tonsils removed, I wasn’t directed to multiple doctors just to find one that was one willing to provide me with the medically necessary treatment that my condition required. There is such a sigma related to psychiatric and substance abuse related disorders, which makes it scary to reach out in the first place.
“When you finally build up enough courage to reach out for help, and then your efforts are thwarted, it feels defeating.”
Family members share stories about difficulty accessing mental health and addictions care as results of year-long study are detailed at press conference
Roslyn Heights, NY, December 11, 2017 — If you’ve tried to get help for a family member or loved one who was struggling with mental health or chemical dependency issues and had trouble finding a provider who takes your insurance, you are not alone.
Today, North Shore Child & Family Guidance Center (also known as the Guidance Center) released the results of Project Access, a year-long study in which approximately 650 Long Islanders were surveyed about their experiences and frustrations in trying to obtain help. The results were announced at a press conference at the Guidance Center’s Roslyn Heights headquarters on Monday, December 11.
“This report verifies what we have long known: Insurance companies and the government are not living up to their responsibility to provide people with quality, affordable and timely mental health and addictions care,” said Andrew Malekoff, Executive Director of the Guidance Center. “Even though they are legally bound to have adequate networks of care, they fall far short of that mandate.”
A few key findings:
Almost half of the participants said that it was more difficult finding help for mental health or substance abuse problems than finding help for physical illnesses, especially when they were in crisis.
Nearly 40% said that their insurance company did not have an adequate number of providers.
Two thirds told us that their insurance company was not helpful to them in finding a suitable provider for themselves or a loved one.
Almost 40% of participants reported that stigma and affordability were impediments to seeking care.
And, almost 25% of participants reported that they felt their attempts at accessing care were futile.
The problem of access is often complicated by a family’s reluctance to seek help for a mental health or drug problem, as opposed to physical illnesses like cancer or diabetes. Despite progress, stigma still looms large.
Kerry Eller spoke of the difficulty in finding treatment for her family member who has mental health and chemical addictions issues. “When my sister’s condition began to worsen, it put our entire family into crisis,” said Eller. “We knew she needed professional help to get her through this incredibly difficult time. It was extremely challenging to access appropriate treatment for my sister. The insurance company was not helpful with connecting us to in-network providers; they would give us referrals but when we would call, we would often find out that they no longer participated with our plan. It was exhausting and heart breaking to have to endure one failed call after another.”
Janet Susin, the President of Queens/Nassau NAMI, spoke of the trouble she faced getting her son care for schizophrenia. “At our first visit to the ER, their first question wasn’t ‘How is he doing’ but rather ‘Do you have insurance that covers mental health care?’ The reality is that there are not enough psychiatrists, particularly child psychiatrists, and very few are willing to take insurance.We need to do something to rectify that situation.”
State Senator Todd Kaminsky, who also spoke at the press conference, said, “The Project Access report is a damning indictment of where we are with mental health and addictions care in our state today… We’re not in the 19th or even 20th century. We have to do better!”
State Senator Elaine Phillips told the audience, “With Project Access, we now have the data when we write to our government and state agencies. We need to demand change so people get the support they deserve!”
For her part, Rebecca Sanin, President/CEO of the Health and Welfare Council of Long Island, spoke of the great disparity in obtaining mental health care as opposed to care for physical illnesses. “Imagine if cancer patients faced delays and inadequate coverage; we would be up in arms as a region,” she said. “Project Access shows that two-thirds of respondents said insurance companieswere not helpful and that it required multiple calls and contacts to access care. This is unconscionable. When a person is in crisis, the window to engage in treatment is small, and it may never open again if they are turned away.”
“We are calling on the New York State Department of Financial Services to launch a thorough investigation of this issue,” said Malekoff. “It’s incumbent upon all of us to advocate for change. Access delayed is access denied. People’s lives are at stake.”
The study is supported by the Long Island Unitarian Universalist Fund of the Long Island Community Foundation.
Roslyn Heights, NY, November 27, 2017 — It’s a scenario that is far too common: Someone makes the difficult decision to seek out professional help for a mental health problem for themselves or their loved one and is faced with a myriad of roadblocks, including a lack of providers who take their insurance and demand cash only—or even if they find a therapist in their plan, the provider has an enormously long waiting list or is not accepting new clients at all.
North Shore Child & Family Guidance Center (also known as the Guidance Center) led an effort to assess these problems with Project Access, in which approximately 650 Long Islanders were surveyed about their experiences in trying to obtain help. The results will be announced at a press conference at the Guidance Center’s Roslyn Heights headquarters on Monday, December 11 at 10 a.m.
Expected to be speaking are New York State Senators Elaine Phillips and Todd Kaminsky; Janet Susin, Past President of the National Alliance on Mental Illness (NAMI) Queens/Nassau; and Rebecca Sanin, President of the Health and Welfare Council of Long Island.
“This report verifies what we have long known: Insurance companies and the government are not living up to their responsibility to provide people with quality, affordable and timely mental health and addictions care,” says Andrew Malekoff, Executive Director of the Guidance Center. “Even though they are legally bound to have adequate networks of care, they fall far short of that mandate. It’s incumbent upon all of us to advocate for change. Access delayed is access denied. People’s lives are at stake.”
A few key findings:
Almost 50% of respondents indicated that it was more difficult finding help for mental health or substance abuse/addiction problems than finding help for physical illnesses, particularly when they were in crisis.
Nearly 40% of respondents said that their insurance company did not have an adequate number of providers.
Exacerbating the problem of individuals finding appropriate providers for mental health and addictions care is stigma and the shame it generates, notes Malekoff. “If someone’s child has cancer, they won’t hesitate to call the doctor, but because of the stigma surrounding mental health, it makes it very difficult for them to reach out. Clearly, as this study reveals, despite any
progress made in eradicating stigma, we still have a long way to go with respect to public education and mental health awareness.”
The aim of Project Access is to raise public consciousness, stimulate interaction among stakeholders and motivate New York State, through the Department of Financial Services, to carry out a thorough investigation of commercial health insurers with respect to access to care.
After reviewing the research, Project Access committee member Dr. Ilene Nathanson, Chair of the Social Work Department at LIU Post, concluded, “If the definition of insurance is protection then the gross inadequacies of our insurance system are laid bare in this study. Delays, unaffordability, outright inaccessibility – all courageously endured by human beings in need of mental health care. It is time that the insurance industry stepped up to the task of protecting.”
The study is supported by the Long Island Unitarian Universalist Fund of the Long Island Community Foundation.
For previews of the research prior to the press conference, contact Andrew Malekoff at amalekoff@northshorechildguidance.org.
We’re pleased to provide you with a link to the results of a year-long research undertaking called Project Access, which has been supported by the Long Island Unitarian Universalist Fund of the Long Island Community Foundation.
We surveyed almost 650 respondents across Long Island about their experiences regarding the ease or difficulty with which they were able to access mental health and addictions care. As the results of our study show, far too many people are having trouble finding timely, affordable, quality care for themselves and their loved ones. Access delayed is access denied.
We hope that you will find this report affirms what many of us know anecdotally regarding the impediments we and our neighbors experience when seeking to access care. Please feel free to forward this and to make your legislator aware of it.
Facebook’s first president Sean Parker said Wednesday that the social media giant was designed to exploit “human vulnerability.”
“We needed to sort of give you a little dopamine hit every once in a while because someone liked or commented on a photo or a post or whatever,” Parker said at an Axios event in Philadelphia. “It’s a social validation feedback loop. It’s exactly the kind of thing that a hacker, like myself, would come up with because you’re exploiting a vulnerability in human psychology.”
He went on to say the “[The inventors] understood this, consciously, and we did it anyway.”
Parker says he now wonders about the consequences of Facebook on future generations.
“God only knows what it’s doing to our children’s brains,” he said.
Mental health experts say it’s having a negative impact. Andrew Malekoff, of the North Shore Child and Family Guidance Center, says those overly absorbed in the site often become isolated, anxious and disconnected.
Malekoff says parents should consider putting limits on the time their children spend on social media.
North Shore Child & Family Guidance Center recently hosted psychotherapist, author and parenting expert Sean Grover for a workshop titled “When Your Child Relates Better to Screens than Human Beings.” We were pleased to offer this program to help fortify parents during these difficult times.
As tech-dependence increases, many kids move through the world in a self-centered bubble, separated from their own thoughts and feelings, as well as the thoughts and feelings of others. As conversation skills and positive interactions crumble, technology even starts to change kids’ sense of humanity; they are less compassionate and sensitive to others. The workshop explored these vital issues and offered advice about what parents can do to help.
“Everywhere you look, children are staring into cell phones, screens, computer screens, tablets, iPads and more,” said Grover, who has appeared on the Today Show, in the New York Times and in many other media outlets. “While some kids use technology as a pastime, others are absorbed by it. Technology devours their lives. They can’t put it down or turn it off. These kids tend to be more isolated and anxious, have poor people skills, difficulty maintaining friendships or an unstable sense of self.”
In his workshop, Grover gave parents guidelines on how to take back control and help their offspring wean off their technology addiction. Here are some of his tips:
Tech Blackouts
Set aside specific times at home when no one (parents included) uses technology. Cell phones, computers, iPad…everything is off. If you want your kid to be less tech-addicted, you must lead the way. Tech-free time can be spent reading, talking, playing games, cooking, making art…anything creative or social will do.
Tech Hours
Kids resist structure—but fall apart without it. Technology needs limits. For instance, I often recommend that families establish tech hours; time for homework, gaming or surfing the Internet. Scheduling tech time will help to limit battles by setting clear guidelines. For instance, when it comes to gaming, many parents may allow thirty minutes a day during the school week and two hours a day on the weekends.
Tech Spaces
When possible, keep all technology in a common space like the living room — not in a child’s bedroom. Establish communal places for tech time; try to avoid allowing your kid to disappear for hours behind a closed door.
Tech Limits
There are plenty of online services that can filter out inappropriate or violent material. These services can also limit Internet access by scheduling times that the Internet is available and times when it is not. One example of such a service is Net Nanny.
If you haven’t already read between the lines, you should know that how you use tech devices influences your ability to effectively guide your kids. Although your example is not the sole factor, keep in mind that as distant as some kids become from adults as they are moving through their teen years, they continue to observe you, and more closely than you know.
As the lyrics from the 1970s-80s new wave rock band the Police advise: “Every breath you take, Every move you make, Every bond you break, Every step you take, I’ll be watching you.”
Andrew Malekoff is the executive director of North Shore Child & Family Guidance Center, which provides comprehensive mental health services for children and their families. Visit www.northshorechildguidance.org for more.
